heart is breaking

[missingisaiah]

One of my friends is about to enter this horrible journey we are on. Her 11 week old son is dying. He was born with sever medical problems. The doctors did not expect him to live more than a few moments. He surprised them by be able to go home, by being able to eat, by smiling. Yesterday he wasn't doing well. Today he is worse and my friend and her husband were told it was only a matter of time.
I know what they are going through. I know that even though she knows the outcome, my friend can't help but have a bit of hope in her heart.
The stupid comments are already starting on her facebook page. Comments like "You are strong, you will get through this." "God doesn't give us more than we can handle." "You had 11 weeks with him, that's more than the doctors said you would have." I want to smack all those people for her! Eleven weeks isn't long enough. She isn't strong right now, she is breaking. She can't even feel God's presence so she certainly doesn't want to hear about how He's not giving her more than she can handle.
She lives in Texas, so I can't be there, but she knows she can call any time, day or night.
I just wish she could have gotten a miracle of having her son completely healed here on earth. I wish she didn't have to walk this path.

[jaredsmommyforever]

I am so sorry Brenda. It is doubly hard when we know so intimately what this horrible journey is like. I know you wish you could do more, but just knowing that you are there and understand will mean a lot to her in the coming days, weeks and months.

[Healthylife4 Tori]

((Brenda))) my thoughts and prayers are with your friend and you. Im sorry how stupid people are.

[missingisaiah]

Rylen made an unexpected rally. He's eating again, cooing, laughing, alert, breathing well, etc. Doctors and nurses are shocked. I'm praying this upswing lastas a long, long, long time.

[Healthylife4 Tori]

Oh Brenda, that is amazing. Praise the God!! I will keep him in prayers.

[joan]

wonderful - give us udates when you can!

[joanie]

I hope Rylen is still doing well, still sending lots of prayers for him and his family...... ((((((HUGS)))))))

[myangelamanda]

How is Rylen now? I can tell you as a mom who had a sick child, these positive steps are sometimes even more gut wrenchingly painful and torturous to acknowledge and watch than the illness itself especially if the rally ends and then starts up again and then ends and then starts up again ... it's an exhausting array of emotions being felt which also include the reality of what the end result may very well be. It's not even hope you're clinging to and feeling ... it is sheer desperation. I feel for your friend so much right now. It has brought back so much internal and silent emotional pain we moms/dads experience when watching our child suffer and fight for their lives.

I would probably post something on her Facebook in her defense and in a round-about way so other people would stop writing those things. I had to do it for my friend on her Caringbridge page. I have since had people come up to me and thank me for ending what was quickly becoming a "memorial and tribute" and my friend's daughter was still alive and fighting for her life. I just couldn't sit and watch people writing the things they were writing without stepping in and saying something which I based completely on my own experience but it got the point across and people stopped.

My heart hurts for your friend.