trying to remain calm

[missingisaiah]

John is sick. Doctor doesn't know what is wrong. He is not sleeping well, yesterday and today he didn't eat well, lost weight. Yet no signs of infection or illness.
Went through this with Isaiah the week before he died.
Talked to the Dr. for awhile on the phone tonight. He was able to calm me down a bit. He said several times, "You are the mom. You want me to run tests now instead of waiting a week or until things get worse, I order the tests to be done tomorrow. You think I am not taking it seriously enough, you yell at me." Love that he didn't try to brush my fears away.
Still can't stop that fear that history is going to repeat itself.

[myangelamanda]

Hi Brenda ~

I'm sorry I haven't been posting much lately ... just a busy time of the year with school things that take up a lot of time ~ you'll see as soon as both John and Tabatha start school ~ it is just a completely different kind of busy so I really am sorry for not being around as much ... but when I read your post ... I just HAD to take a few minutes to write because I can relate to your absolute fear.

All I can say is I know. I get it. I go through it at least once every few months when one of my kids says their legs hurt ... or like last night ... was dizzy for no reason and has a blood shot eye (jason) ... or even just going for well visits or sick visits (it was a sick visit that put Amanda in the PICU of our children's hospital).

It.is.the.worst.

Oh and over the past few years my kids have all had bizarre symptoms (which probably aren't normally bizarre but they are to me) that the doctor would say "hmmm. Could be this could be that or even this and that or nothing at all." grrrr. I've cried making appointments. I've cried calling the nurse with a question. I've cried during visits. I've cried even in the waiting room. I've yelled at the nurse who couldn't "find" me an appointment even though I was the first call of the day ... and I've even insisted on seeing a doctor in times when my gut told me everything was OK ...

You sound like you have a great doctor who is willing to do what YOU want to have done. Mine are like that, but it takes an upset state of mind to get results.

Isaiah and Amanda both died with out-of-the-blue reasons. Yours isn't known which is really hard and mine isn't even in the family so no one knows how or why this happened to her. Sucks not having anything concrete.

I hope John is feeling better and that it's nothing more than teething. I know that is the simple answer, but I do hope that's all it is.

Please let me know how he is doing when you know more. Did you do any testing? You all are in my prayers because this kind of worry just plain sucks.

xox

[missingisaiah]

Last night was horrible. John slept for an hour, woke up screaming. Took two hours to calm him down. This pattern continued all night long. This morning he would only eat 1 oz. I called his Dr. They got him in. He had some blood work done. That all came back normal.
On the way home, John fell asleep, slept for 2 hours so I slept. When he woke up he inhaled his food, not the normal amount, but close, then smiled, played, chattered to the dogs. I am hoping and praying he is back to normal and this acting better isn't a fluke!
Thanks for responding Michele.

[missingisaiah]

Forgot to mention John lost 4oz between yesterday afternoon and this morning. So I am really, really, really glad he is acting like his normal self right now or I'd be really freaked out.

[Clara Hinton]

I'm so glad that your little sweetie is feeling better today. Hopefully, he'll gain back the 4 oz. he lost PLUS some!

The fear and protectiveness you're feeling is so normal, and it's important that you follow through on your fears for your sanity's sake. If something doesn't seem right, then call your doctor and get things checked out. I'm so glad you have such a great doctor! I wish every doctor was like yours!

And, I'm super thrilled that everything seems back to normal today! ;D

Love,
Clara

[weeblemom]

I'm glad he is feeling better!