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Post by ceagles on Nov 10, 2011 13:31:20 GMT -5
All I can say is this has been a very difficult year. I am new to this forum because its hard to find the right support in my family. At the beginning of this year I found out I was pregnant with Twins. I was soooo excited to hear this. Unfortunately I lost them in May on mothers day weekend. This was unbelievable emotional. I didn't want to get up and didn't want to see my husband and my 2 year old keep asking what's wrong with mommy. Over a small period of time we got pregnant again. But once again I lost the baby just recently. I keep asking my doctor why this is happening and they keep saying it's just wasn't meant to be. I don't think that's the case at all. With my 2 year old I was deemed high risk through the pregnancy because of early bleeding. They had me on bed rest and everything. I keep asking them to give me tests as there must be a reason why I lose my babies or bleed throughout my pregnancy. Has anyone else had similar situations and if they ran tests on you what was the diagnoses?
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Post by Debs on Nov 10, 2011 14:43:33 GMT -5
First of all, I am so very sorry for your losses. Almost everyone on this board has found that it is hard to find people who understand what you have been through.
My two year old is living proof that doing the testing is worth it. We had a large family, but felt strongly that there was another child who was meant to be part of our family. It took some time to conceive, and when we finally did, I miscarried. I had miscarried before, so we just tried again. I got pregnant again, and found out at about 11 weeks that the baby had died several weeks earlier. We were devastated. We tried once again, only to lose the baby shortly after the positive test. Everyone said it was probably just bad luck since we have several children. But thankfully I had a supportive doctor willing to do some testing. He did what is called a "recurrent miscarriage panel" which is basically a battery of blood tests for some of the more common miscarriage causes (as well as some not-so-common ones). They test thyroid, blood sugar, and several other things.
Most of my tests came back normal, but it turns out that I have developed an autoimmune clotting disorder. This causes the blood to be more "sticky", so to speak, and the platelets clot more easily. It can cause miscarriage from the first days up to a stillbirth near the end of pregnancy, just depending on when the blood develops clots big enough to affect the placenta.
Someone affected by my disorder only has about a 20% chance of a normal pregnancy. However, with heparin and baby aspiring through pregnancy, success levels become almost equal to someone without the disorder. With treatment, we held our beautiful Sophia in our arms for the first time in June 2009, two days before my 40th birthday. She now spends her days being spoiled rotten by grateful parents and her older siblings.
Mine is only one story. There are many, many women on this site who found their solutions through a simple blood test. If your doctor won't do a miscarriage panel for you, set an appointment with another doctor, or with a specialist who will. I hope you find answers soon. Debs
Modified to add: I also had a large amount of bleeding with an earlier child, as well as hemorrhage after birth, and a miscarriage previous to other children. Looking back, I think I had the disorder long before testing; I was just very lucky to get my boys here without intervention.
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Post by benner1976 on Nov 10, 2011 15:42:59 GMT -5
I'm so sorry that you have joined us here and have had to go through such excruciating circumstances. I agree with Debs that a panel would be great idea at this point. My story is just a bit different. I had a completely healthy normal pregnancy with my oldest. With my second child, I did well until about 28 weeks, then I ended up in preterm labor and a pretty intense situation. We almost lost him more times than I care to count and more times than I realized then. The doctor convinced me that it was just stress/bad luck and I believed her. Then we got pregnant with our first angel. About 8/9 weeks along we found out he was gone. "Bad luck" yeah oay. Then we got pregnant again Iand lost that baby nearly immediately. "Really Bad luck". I wasn't falling for that one this time. I insisted that I need to go see a Maternal fetal medicine specialist. My doctor wasn't offering a miscarriage panel, but the MFM did. What they found with me is that I have 2 different blood clotting disorders. One that likes to end pregnancies in the beginning and one that likes the 2nd/3rd trimester. I was born with them. It makes every pregnancy 50/50 of a successful outcome. I got lucky with my oldest. I got extremely lucky with my middle. For our little rainbow, I took lovenox every night and it brought my risk to a normal rate. I would definitely push for the miscarriage panel.
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Post by jalieg on Dec 26, 2011 13:15:56 GMT -5
I've miscarried 2 pregnancies and ALMOST lost 2 more... The comman factor? The babies were ALL boys. The ONLY pregnacy I have had WITHOUT ANY problems was with my daughter. I DID ask my doctor about that, and she saud YES YOUR BODY CAN prefer girls over boys
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Post by ama01 on Dec 26, 2011 22:10:22 GMT -5
How far along were you with your twins? Did the hospital do any testing when you lost them? There is a typical "protacol" for additional testing, and I believe that one second-trimester loss, followed by an earlier miscarriage would count. If your doc won't do testing, seek a 2nd opinion. Set up a consultation with an OB. I have bneen through many tests and nothing has showed up (two late losses after two healthy pregnancies and babies) BUT I am #1 glad to at least know that there isn't something wrong and #2 my MFM doc would still recommend Heprin and baby asprin IF I get pregnant again. You have to be your own advocate and fight for what you want. Even if they don't find anything, it's at least better to know that there isn't an answer, then to wonder if there might be one. ((HUGS))
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Post by ceagles on Dec 27, 2011 9:37:28 GMT -5
I was 17 weeks with the twins and 8 weeks with the last pregnancy. I have been getting some testing done and they determined so far that I have a hyper active throyid and a heart condition which they haven't diagnose yet. I do have one healthy toddler girl who I love with every inch of my heart. But I do know that boys are hard to carry. There was a documentray done a few years ago called the disappearing male and it talks to how difficult it is to carry boys. My twins was boys but the other miscarriage I never knew. . Here's hoping the right drugs will let me carry another heathy baby.
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Post by justlostanangel on Dec 29, 2011 0:26:07 GMT -5
I'm so sorry you're dealing with such heartbreak again!! The ladies are right; I'd ask for testing. Some dr's think you have to have 3 or more losses to be considered "recurrent" losses, but others will test sooner if you ask. There are many issues (clotting, automimmune, thyroid, etc) that can impact your fertility & ability to maintain pregnancy. Hope that you have some answers soon! {{{{{{HUGS}}}}}}
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