Post by springtimebabe on Jul 16, 2011 0:13:39 GMT -5
I just found out that my mother that is soon to be 79 has a bad case of Lyme Disease. She didn't tell me sooner thinking it would be too much on top of Tobie's arrival. She been on Doxyclyline (sp?) and has lots of blood work coming in as positive for Lupus Anticoagulent and all the things that I had when I was infected in 2002.
She already has a bad case of hypertension. There's a term for it. It's the kind that is high and drops really low. Her pulse has been erratic and on the low side (44) and lately it's been unable to be picked up on her home bp monitor. She calls Aetna all the time with her readings and if they see it fit to be called into the dr. , they call. She has been fudging the #'s at times to get them to leave her alone (dumb) and has had fainting spells.
The dr thinks it's a new infection since her symptoms like joint pain, extreme fatigue, headaches and visual disturbances just started a couple of weeks ago.
She has a huge dr appt coming up on Wed 7/20 with a specialist.
FYI: I had Lyme Disease in 2002 and I was diagnosed when I was 6 1/2 weeks pregnant with my Angel Lindsey. I lost her and the only theory was all the blood clotting disorders I had while I had an active infection. It was a nightmare for me because my sons were 6 and 1 and I had no help at home and I was at the tick borne disease center every other day during the week getting rounds and rounds of testing, a spinal tap and IV antibiotics. I also had a d&c at 12 weeks after Lindsey died inside me. She had normal chromosomes and was a female.
It was hard on me as a young woman (31) without serious health problems. I had my dd after I was cured which later I found out is a loose term.
My mother being her age with serious health problems is putting her at higher risks. She was supposed to come see Tobias but she had to tell me that she is too weak and is terrified of infecting people. I told her that is something that is controversial and there's no solid proof that it can be transferred from human to human. But, to be on the safe side we all decided that it will be best to wait until she at least finishes her 30-day antibiotic treatment and go from there.
This is sick and it sounds selfish to my own ears. I am scared she will die before I see her again. The part I feel weird about is that she may never see her 3rd grandson. He has meant the world to us, family and many friends. I don't know what is right or wrong to feel here. I don't want my mom to miss holding her grandson that has been so long awaited and I do feel a little nervous about him being held by her with a disease that medical science still does not have all the answers about. Also, somewhere really paranoid in the back of my mind is her holding him while she is on antibiotics. I know that is way overboard but I am just being protective and most likely overprotective.
I know Lyme Disease can be tough to treat and the testing is a long-term process due to the type of bacteria we're dealing with and possible co-infections.
I am worried sick. I have been praying and through it all he has been faithful. I am having difficulty trusting God with all of this since it's a disease. My mom is even losing her faith a bit. She said something about wondering if God created everything - even bacteria. I told her that illness is due to being in the world and God wants you to have faith that you will be cured and recover without permanent damage.
She is a good woman. Former Marine and has been a saint in my eyes compared to most people.
Please pray for her. Our family....thank You.
*************************************************
THANKS and THANK GOD
As Lyme Disease is not a typical infection and has many variables as far as symptoms, treatment levels and ongoing problems, I can report my mom is doing better. She had another follow up on 7/20 and the dr. said that they caught it early enough and (against my better senses) discontinued her antibiotic treatment. She has her next follow up in 3 months. She is asymptomatic now and just dealing with a terrible yeast infection that won't go away. She is feeling better than she has in months. I personally feel that is good news but part of me is still on edge due to the experience I had with Lyme Disease myself.
We're taking Tobias to see her on Mon, Tues or Wed next week. We're leaving it a bit open due to exhaustion and the extreme heat.
I keep saying God is good. I am so glad we named our little miracle Tobias. He is a pure blessing and our lives are blessed.
She already has a bad case of hypertension. There's a term for it. It's the kind that is high and drops really low. Her pulse has been erratic and on the low side (44) and lately it's been unable to be picked up on her home bp monitor. She calls Aetna all the time with her readings and if they see it fit to be called into the dr. , they call. She has been fudging the #'s at times to get them to leave her alone (dumb) and has had fainting spells.
The dr thinks it's a new infection since her symptoms like joint pain, extreme fatigue, headaches and visual disturbances just started a couple of weeks ago.
She has a huge dr appt coming up on Wed 7/20 with a specialist.
FYI: I had Lyme Disease in 2002 and I was diagnosed when I was 6 1/2 weeks pregnant with my Angel Lindsey. I lost her and the only theory was all the blood clotting disorders I had while I had an active infection. It was a nightmare for me because my sons were 6 and 1 and I had no help at home and I was at the tick borne disease center every other day during the week getting rounds and rounds of testing, a spinal tap and IV antibiotics. I also had a d&c at 12 weeks after Lindsey died inside me. She had normal chromosomes and was a female.
It was hard on me as a young woman (31) without serious health problems. I had my dd after I was cured which later I found out is a loose term.
My mother being her age with serious health problems is putting her at higher risks. She was supposed to come see Tobias but she had to tell me that she is too weak and is terrified of infecting people. I told her that is something that is controversial and there's no solid proof that it can be transferred from human to human. But, to be on the safe side we all decided that it will be best to wait until she at least finishes her 30-day antibiotic treatment and go from there.
This is sick and it sounds selfish to my own ears. I am scared she will die before I see her again. The part I feel weird about is that she may never see her 3rd grandson. He has meant the world to us, family and many friends. I don't know what is right or wrong to feel here. I don't want my mom to miss holding her grandson that has been so long awaited and I do feel a little nervous about him being held by her with a disease that medical science still does not have all the answers about. Also, somewhere really paranoid in the back of my mind is her holding him while she is on antibiotics. I know that is way overboard but I am just being protective and most likely overprotective.
I know Lyme Disease can be tough to treat and the testing is a long-term process due to the type of bacteria we're dealing with and possible co-infections.
I am worried sick. I have been praying and through it all he has been faithful. I am having difficulty trusting God with all of this since it's a disease. My mom is even losing her faith a bit. She said something about wondering if God created everything - even bacteria. I told her that illness is due to being in the world and God wants you to have faith that you will be cured and recover without permanent damage.
She is a good woman. Former Marine and has been a saint in my eyes compared to most people.
Please pray for her. Our family....thank You.
*************************************************
THANKS and THANK GOD
As Lyme Disease is not a typical infection and has many variables as far as symptoms, treatment levels and ongoing problems, I can report my mom is doing better. She had another follow up on 7/20 and the dr. said that they caught it early enough and (against my better senses) discontinued her antibiotic treatment. She has her next follow up in 3 months. She is asymptomatic now and just dealing with a terrible yeast infection that won't go away. She is feeling better than she has in months. I personally feel that is good news but part of me is still on edge due to the experience I had with Lyme Disease myself.
We're taking Tobias to see her on Mon, Tues or Wed next week. We're leaving it a bit open due to exhaustion and the extreme heat.
I keep saying God is good. I am so glad we named our little miracle Tobias. He is a pure blessing and our lives are blessed.
