Post by michelle2204 on Dec 14, 2010 5:45:44 GMT -5
Hi all,
I am a long time reader and would like to share my story with you. My daughter was born 10 weeks premature on 11 June 1999.
At 12 days old she contracted an infection though a long line drip she had in place. When the nurse discovered she was ill, she was already bleeding from her mouth and was mostly lifeless.
The doctors fought for a long time to save her life and I (not knowing what I know now) was desperate for them to save her.
She remained near death for about 5 days and then recovered from the infection.
The result from the Staphylococcus strain of infection was severe brain damage, epilepsy, mostly blind and deaf.
Her father and I were not aware of the extent of the damage until approx a month later when the swelling in the brain had reduced to a size that the doctors could see the white matter.
Her diagnosis is spastic quadriplegia cerebral palsy, she is unable to do anything for herself at all. No independent movement, no words, nothing except for a lovely smile.
I would very much like to speak with other parents with disabled children, as she gets older, I get more and more afraid for her everyday.
Thanks for reading
Michelle
I am a long time reader and would like to share my story with you. My daughter was born 10 weeks premature on 11 June 1999.
At 12 days old she contracted an infection though a long line drip she had in place. When the nurse discovered she was ill, she was already bleeding from her mouth and was mostly lifeless.
The doctors fought for a long time to save her life and I (not knowing what I know now) was desperate for them to save her.
She remained near death for about 5 days and then recovered from the infection.
The result from the Staphylococcus strain of infection was severe brain damage, epilepsy, mostly blind and deaf.
Her father and I were not aware of the extent of the damage until approx a month later when the swelling in the brain had reduced to a size that the doctors could see the white matter.
Her diagnosis is spastic quadriplegia cerebral palsy, she is unable to do anything for herself at all. No independent movement, no words, nothing except for a lovely smile.
I would very much like to speak with other parents with disabled children, as she gets older, I get more and more afraid for her everyday.
Thanks for reading
Michelle
