Post by heartsabroke on Feb 28, 2009 16:17:56 GMT -5
How frustrating. Just when Sophia was trying so much harder, then she had the hospital stay and took huge steps backwards. She resorting to the fit throwing and not using any signs or words. Just screaming. Its hard.
Then while we were in the hospital. Her first IV infiltrated (sp?) and they had to take it out and then put it in again. She ended up just like Becca, couldn't get a vein in her arm on either side, so they put it in her foot. That meant, she couldn't get up and walk at all. She had to stay in bed, or be carried, or ride in the wagon.
Then they would come in and try to be friendly with her, and she just wouldn't talk to any of them. Not even try. It was like she just shut off, and now I can't figure out how to get her started again.
And, she was in the hospital on the 24th when she was supposed to see the eye specialist. I had to reschedule and they cannot work her in until April 24th!!!!!!!!!. I'm not used to that at all. Our ped works us in within a few days at most. Usually, they see her same day. So the 24th seems like it is just so far off. I wonder if her eye will get worse with that long of a delay. I really don't know.
I guess I'm rambling. It was a long week. Time for me to settle down, figure out a plan for her, and then hopefully she will be able to get back what she has lost.
Thanks for listening.
Lisa
Then while we were in the hospital. Her first IV infiltrated (sp?) and they had to take it out and then put it in again. She ended up just like Becca, couldn't get a vein in her arm on either side, so they put it in her foot. That meant, she couldn't get up and walk at all. She had to stay in bed, or be carried, or ride in the wagon.
Then they would come in and try to be friendly with her, and she just wouldn't talk to any of them. Not even try. It was like she just shut off, and now I can't figure out how to get her started again.
And, she was in the hospital on the 24th when she was supposed to see the eye specialist. I had to reschedule and they cannot work her in until April 24th!!!!!!!!!. I'm not used to that at all. Our ped works us in within a few days at most. Usually, they see her same day. So the 24th seems like it is just so far off. I wonder if her eye will get worse with that long of a delay. I really don't know.
I guess I'm rambling. It was a long week. Time for me to settle down, figure out a plan for her, and then hopefully she will be able to get back what she has lost.
Thanks for listening.
Lisa
