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Post by Corinne on Oct 5, 2008 12:55:36 GMT -5
Where are you guys? I keep checking for updates and have not seen you. I hope everything is OK
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Post by monicag on Oct 6, 2008 15:47:25 GMT -5
Just so busy....
Jesse is doing pretty well with school...but has an ear infection today...UGH. We are getting his "128 slot" talker this week...we are excited about that. I am pushing to get him integrated into what they call the "Friendship Academy"....classes with typical kids and kids with IEP's
Zach....is sad. He has been diagnosed with Generalized Anxiety Disorder and OCD. He is only 10 but takes so much on himself. We have been in counciling since February and now she is suggesting that he see a psychiatrist for meds. He is happy to go and just wants to feel better. He is anxious about everything. I wanna just cry for him.
Anneliese is 14 almost 15 and we just found out she has scoliosis. It is an 2 S curve and measures 22 and 13 which is not too bad but she is not at her full height yet. So I'm checking out chiropractic care and seeing an orthopod to see if they recommend a brace...she is less than thrilled.
As for me I have killer fibroids and have to have surgery AGAIN...but a laporoscopy this time to check "something on your ovary" he is not worried and I don't have time to be.
So when it rains it pours.....
I have so little time anymore...if you can believe that. I wonder and think and pray for everyone often....I wish life were like the JETSONS where we could pop here and pop there....it would be SO much easier..
How are you?
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Post by Corinne on Oct 7, 2008 6:42:06 GMT -5
Wow, Monica, I guess you are busy. I tend to forget how life can be with all the children home and dealing with so many different issues. I'm glad to hear Jesse is doing well. I hope Zach can get things under control. He is too young to have to deal with these issues. I'm sorry you are going through this. I often wonder if it has anything to do with having a sibling with special needs. We dealt with many issues with Amanda when she was younger.
Poor Anneliese, this is not something a young woman wants to deal with. Hopefully they wont have to put a brace on her. Let me know how the chiropractor visit goes.
As for you, good luck, just what you need on top of everything else.
I am doing OK. Still trying to come to terms with my Mom's death. Can't seem to grasp it. I keep reaching for the phone to call her.
Corinne
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Post by monicag on Oct 7, 2008 18:02:32 GMT -5
Oh Corinne, I'm sorry about your mom. I must have missed that post. I often hear people say that the hardest thing is wanting to pick up the phone and talk. I can't begin to imagine. But I do imagine that Tim has a dance partner now  Thanks for your support...there is alot going and I have to take it one hour at a time. Annie's appointment with the orthopod is Friday and Zach see's the Psychiatrist on Monday...Jesse is going to the CP clinic for the first time Nov 4th....so hopefully we'll get some good outcomes... one out of three would make me feel better at this point. |
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Post by Corinne on Oct 8, 2008 12:40:42 GMT -5
{{{{{{{Monica}}}}}}}
Your doctor schedule reminds me of what mine was when my children were younger. Good luck through it all and remember, take care of YOU. We tend to forget about ourselves when there is so much going on, but they need you to be healthy too. OK?
Love
Corinne
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Post by monicag on Oct 8, 2008 15:48:12 GMT -5
I hear you... and as sick as it sounds, I'm looking forward to relaxing a bit after surgery...How sad is that?
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Post by monicag on Oct 11, 2008 3:51:22 GMT -5
Annie does need a brace...but I'm not happy with that and will be checking out Children's hospital for a second opinion. I think there is more going on here.. PM me if you want details.
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Post by wuvmyangel93 on Oct 26, 2008 0:11:40 GMT -5
I have sadly been away since coming home in August things have been very crazy and I do miss silent grief alot.
I decided to ride the quarter out and see if I could either get the teachers on board or get my daughter to see that doing her very best eventhough the circumstances aren't the greatest would be better than showing them how right they were.
She has met the bar and far exceeded it.
In the advanced history class NO teacher or principal believed she could do she got 99% only missed 3 points. She just finished writing this amazing children's story for her next project over 52 pages with like 3-5 sentences per page all typed by herself NO scribe or alphasmart. Every page handdrawn and colored absolutely amazing.
I dropped it off at the print shop today so she could keep the original and have a nicely bound book for the teacher.
Band with the new teacher is amazing they still denied her jazz band which they are calling honor band saying she is not able to do it since mostly it is an independent band still on the fence about filing a discrimination ocr complaint or not.
She is not doing gymnastics still, but is loving the new dance instructor in town she is the only one in her grade for jazz/tap and the oldest in a group of 6 for ballet. She is bowling on saturday mornings still.
Overall she seems so much happier this year than in the last 2 of middle and has all b's and an a for first quarter.
Me I've just been doing a lot of volunteering work for wishuponahero.com and lost sight of other things for awhile.
I hope to be not so busy and able to check in more awesome.
Jesse sounds like he is doing great and I am so sorry bout the other kiddos monica. mine has GAD and scolosis as well but both are very under control.
Corrine sorry bout your mom I missed that post.
Hope to see an update from barb and rachel soon.
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Post by monicag on Oct 28, 2008 13:16:53 GMT -5
WHOO HOOO to you and Kali-Morie. Sounds like an awesome year. Her book sounds so great. I hope someday to have the opportunity to see it. Jesse is doing well but the school has many issues.....the teacher quit and there is a new one. But I've insisted on a meeting because they are NOT following his goals. UGH.... what else is new. But I learned from the best!!! (that's you Etho). Miss hearing what's up. Hope you can get here more!!! |
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Post by Corinne on Nov 1, 2008 14:16:37 GMT -5
WOW! Congrats to Kali-Morie!!! You have to be so proud of her. She is an amazing girl. I can see her going far in life, nothing is going to hold her back. You have done a remarkable job raising her. Good for you!
Corinne
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Post by babs on Nov 24, 2008 21:04:09 GMT -5
I have been offline forever...just as well cuz i have been super busy. Lol im even writing this on my cell so bear withme! Brody is doing great! He is taking almost half of his feedings by mouth and is holding his head up like a champ! They wouldnt allow him in the study for the vital stim program so we are just pressing forward alone. He even got denied for respite care so.... Lexi is doing great in the fourth grade. She got all perfect scores on her ohio achievement tests! Ricky is so far off of the hook that in embarrassed to tell but he could use any prayers you could send his way. Im ok, just alone with the kids alot lately. I hope to be able a be a little more in touch. Thanks for thinking of us. I love you ladies!
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Post by Corinne on Nov 26, 2008 8:00:58 GMT -5
Barb, thanks for updating, I was worried that something happened. Glad to see everyone is doing well. Why did they deny respite? That is not fair.
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Post by babs on Nov 26, 2008 11:42:17 GMT -5
Said that he didnt fit thier level of care. Whatever that means! They said the only way he would qualify is if we put him in a long term care facility and thats not an option for us right now. And as soon as our families heard that i had applied they all decided to let me know how terrible it was for me to even think of leaving him with someone. Its not like any of them ever have offered to help but im a selfish person for asking for help. Now they are all gloating about the fact that he got denied. Danny even took a job that keeps him away for 14hrs a day so its me and the kids all the time. Hes leaving tonight for 5 days because he ' needs a break' out of town with friends. But thats a whole other post! Im probably not seeing it clearly because im mad and tired. I an working with hospice to start a support group and informational program for other parents who are referred to them. That helps make me feel useful. And even before B thats what i always wanted to do. Lol i just strap him to me and get on about it! He is such a little man these days, i think he likes to be up and moving because when we stop he turns on the 'terrible twos' and whines till hes back up and going! No hes not spoiled too much.....yeah right! And in also trying to get him into a specific school for next year so we are going to start volunteering there a few days a week after the holidays to get him used to it. Oh and there is a place around here that i may be able to get his ins to pay for that does 'daycare'. You will never guess what its called!! Max's house!!! Lol i think its a sign!
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Post by wuvmyangel93 on Nov 26, 2008 22:14:50 GMT -5
WOW barb great to hear from you, we can appeal the respite care decision if you need help let me know
and definitely a sign about the daycare Max's house praying it will be the best for Brody.
And many prayers for Ricky.
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Post by Corinne on Nov 27, 2008 11:12:24 GMT -5
He doesn't fit their level of care?  So, because he has more needs than most children, they can't help you?? That is the way I take it. I am mad for you. That is not right, you need the help. As for Danny, that sounds all too familiar to me. My DH buried himself in work when Tim was about the same age as B. It's called denial. If I am not around to see it, it isn't there and I don't have to deal with it. {{{{{{{{{{{{{Barb}}}}}}}}}}}}}}}} You sound frazzled. I pray you get some relief soon. B will start school when he turns 3 right? And Max's house sure sounds like a sign to me. Love Corinne |
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So, because he has more needs than most children, they can't help you?? That is the way I take it. I am mad for you. That is not right, you need the help.