Post by Alaska on Oct 2, 2006 21:54:45 GMT -5
I cannot tell you how glad I am that there is a board like this here. When things were the most difficult for us, immediately following Caleb's birth and all the subsequesnt hospitalizations, there was no one to help us through that time. What a difficult time. And even now, five years later, there are still concerns that I rarely voice out loud because quite frankly I have been sushed for being over-reactive and overly worried. It is a difficult road to walk alone.
Caleb was a 29-week preemie after prolonged ruptured membranes and a partial placental abruption. He had a fairly typilcal NICU stay (whatever that means--it was horrifying!) and came home two months later at 4 pounds and 15 inches long on a monitor and oxygen. He did not grow. We struggled and struggled with that. He has had significant problems with his lungs and has been hospitalized multiple times for problem related to that. He spent years in ST, OT, and PT learning to eat, talk, walk, etc. He reached all of his milestones fairly late.
Now he is five years old, still wearing 2T's, though cognitively doing very well.
In fact, my dh and I had quite an argument because for the first time ever my dh noticed that Caleb is way, way smaller than the other kids in his Sunday school class. I have been expressing concerns over his really, really small size and have been told by everyone in the whole world not to worry, that he would grow, that their cousin's uncle's mother's sister's husband was a tiny preemie back in the day before blah, blah, blah and just look how how big he is now!!??
So, we continue to work through all of the stuff associated with developmental delays with a beautiful little boy who "looks" absolutely "normal".
Thank you for lettling me talk a little.
Caleb was a 29-week preemie after prolonged ruptured membranes and a partial placental abruption. He had a fairly typilcal NICU stay (whatever that means--it was horrifying!) and came home two months later at 4 pounds and 15 inches long on a monitor and oxygen. He did not grow. We struggled and struggled with that. He has had significant problems with his lungs and has been hospitalized multiple times for problem related to that. He spent years in ST, OT, and PT learning to eat, talk, walk, etc. He reached all of his milestones fairly late.
Now he is five years old, still wearing 2T's, though cognitively doing very well.
In fact, my dh and I had quite an argument because for the first time ever my dh noticed that Caleb is way, way smaller than the other kids in his Sunday school class. I have been expressing concerns over his really, really small size and have been told by everyone in the whole world not to worry, that he would grow, that their cousin's uncle's mother's sister's husband was a tiny preemie back in the day before blah, blah, blah and just look how how big he is now!!??
So, we continue to work through all of the stuff associated with developmental delays with a beautiful little boy who "looks" absolutely "normal".
Thank you for lettling me talk a little.
