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Post by my4boys on Sept 21, 2006 8:38:51 GMT -5
 This morning during breakfast, Lily started screaming and choking. I ran over to see what was wrong and she had orange juice coming out of her nose. I am so upset. First of all, it scared her (and I am sure hurt), so much. She was choking, crying, I could hardly calm her down. She hasnt had ANYThing come out of her nose in almost two years, since her palate repair. This is one thing I knew was a possibility, but they say usually it will happen soon after surgery, if it is going to. I am not sure if they will want to see if it continues or not, but I am already able to see two fissures in her palate. At her last appt there was only a very tiny one. This was so much easier (in a different way, but still hard) when she was a baby, because she didnt express her fears the way that she is able to do now. Surgery at this age will be so much harder on her if she needs it, than it was then. PLease pray that this doesnt continue!!!! Blessings~ Wendy
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Post by tarak on Sept 21, 2006 8:55:46 GMT -5
Oh that must have been sooo scary for you and for little Lily. Praying for you and your little girl.
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Post by jillgibson on Sept 21, 2006 10:07:46 GMT -5
Wendy-
I'm so sorry that you and Lily have to go through this. I'm hoping it was just a one time thing.
I realized while Avery was hospitalized how fortunate we were that she didn't know enough to be scared herself. As a mom, I was definately scared enough for the two of us.
Is there a timeline of when a second palate repair would take place?
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Post by monicag on Sept 21, 2006 12:36:22 GMT -5
Oh my that is scary. Praying for you and your sweet girl.
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Post by Corinne on Sept 21, 2006 12:49:09 GMT -5
Oh Wendy, I am sorry, how scary for Lilly and you!
How large are the fisures? Do they get bigger or is it something they need to watch now?
Corinne
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Post by wuvmyangel93 on Sept 21, 2006 14:21:53 GMT -5
Oh my goodness Wendy. You and the princess Lily are in my prayers that this was a one-time issue.
Praying if surgery must happen it is done soon and with little pain/remembrance on her part.
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Post by prettyfeet83 on Sept 21, 2006 15:58:24 GMT -5
Wendy-
I am praying for you and sweet Lily. I can't imagine how heartbreaking that would be.
Hugs
Carrie
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Post by ericadg on Sept 22, 2006 13:07:13 GMT -5
Oh no.  Every stage we get to, I always think...it will be easier, when.... I wonder if it ever gets easier. |
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Post by rachelandtyke on Sept 22, 2006 15:04:18 GMT -5
{{{Wendy and Lily}}}
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Post by momtoWill on Sept 22, 2006 16:02:10 GMT -5
Sorry, Wendy. This must be so frustrating for you, and especially scary for Lily. Do the fissures ever heal on their own, or is this something they need to repair? ((hugs))
Take care,
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Post by my4boys on Sept 23, 2006 12:03:09 GMT -5
thanks ladies! So far, so good! No more scary incidents! I am hoping it was just a one time occurance! her fissures are teeny..they look like the tip of a needle, but still are there. I am not sure if they will repair these, or wait it out. As for a second actual surgery, as far as I know, they wont do it until she turns 4. Not that any time is a good time....
BUT..for now, she is doing better!!!
Blessings~
Wendy
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Post by thankful heart on Sept 24, 2006 20:35:18 GMT -5
Wow...I'm sure that was a frightening time. Hopefully that won't happen again! I'll be praying for her (and you!)
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Post by babs on Sept 24, 2006 20:58:17 GMT -5
Poor Lilly! How scary!
I'm glad it hasn't happened again! And I'll keep praying that it doesn't.
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This morning during breakfast, Lily started screaming and choking. I ran over to see what was wrong and she had orange juice coming out of her nose. I am so upset. First of all, it scared her (and I am sure hurt), so much. She was choking, crying, I could hardly calm her down. She hasnt had ANYThing come out of her nose in almost two years, since her palate repair. This is one thing I knew was a possibility, but they say usually it will happen soon after surgery, if it is going to. I am not sure if they will want to see if it continues or not, but I am already able to see two fissures in her palate. At her last appt there was only a very tiny one. This was so much easier (in a different way, but still hard) when she was a baby, because she didnt express her fears the way that she is able to do now. Surgery at this age will be so much harder on her if she needs it, than it was then. PLease pray that this doesnt continue!!!!
