We all want answers....

[my4boys]

AFter reading through several posts, it seems we all have one thing in common, regardless of what our childrens "needs" are. We want to know why and what. Why does our child have these needs? What caused them, and for many of us, what exactly ARE they???

None of us want anything to be wrong with our children. But it seems to me that for all of us, it would be so much easier to deal with if our questions could be answered.

Its very difficult to play the "waiting game". How severe will our childrens issues be? Do they, or do they not actually have a syndrome? Are they going to be able to function like other children?

for me, this is the hardest thing to deal with...the unknown. Obviously, I pray that there is nothing more wrong with Lily. I dont want her to need more surgeries. I dont want her to need glasses. I dont want her to have difficulty hearing. I want her to be able to dance and play ball like other little girls. I want all these things for her. But if these things are or are not in her future, I just wish I knew. Does that make sense? I think so many of us are in the same "boat". We just wish we knew, one way or the other, what the future holds for our children.


Blessings~
Wendy

[rachelandtyke]

Yep, that makes sense. If knew what the future held we could plan for it better and modify our dreams for our children. We are in the same boat. I'm so glad Clara started this forum so we could connect like this!

Rachel

[monicag]

I agree. I'm sick of this roller coaster ride... sick of looking things up on the net...and making myself crazy...Anyone have a crystal ball??

[jillgibson]

If someone could tell me when Avery was going to have her next hospitalization (and we've been warned there will probably be many), I'd love to know. That way, I can schedule myself off work, arrange childcare for Izaac, and be mentally prepared. Just waiting for that first heave of the chest is driving me nuts.

[wuvmyangel93]

mine has been diagnosed longer than most so I know longer worry what all these "unrandom" issues are caused by, meaning there are so many diagnosis and they do not go together yet, I cannot spend my energy on that, but it does bother me that there is NO name for it.

What bothers me the most right now is feeling like I have NO time to get her education under control.

Its only been 9 days and already we are having issues with language more severe than we expected not from my child, but the teacher and I have NO clue how to make it better.

I don't know if switching the teacher is the answer, changing the time she has it which would mean her afterschool time would be horrid, putting her in a smaller class etc.

I feel we have lost too much ground already and we have NO time to see how it will play out.

Even with her severe asthma, I've allowed her to do sports, gymnastics and this week will begin ballet/tap.

I just have to be super super dilligent carry snacks, nebulizer, medications everywhere, inspect the environment prior to the start of classes and work with the instructors to keep it medically safe it is very difficult.

[nicoledoug]

Wendy,

I couldn't have said it any better! That is all we want...ANSWERS! Day in and day out this wears on me...