Post by nicoledoug on Sept 14, 2006 21:31:18 GMT -5
Hi everyone,
I first want to say I am so pleased Clara created this new "special" board!
At 2 months old Matthew was diagnosed with Craniosynostosis (premature closure of one or more sutures in the skull). They believe it is due to the low amniotic fluid I had throughout my pg with him. At birth it was discovered he also had a True knot in his cord. He is being closely followed by a Neurosurgeon (has been seen by many others). He has also had many CT scans, X-rays and an MRI (to keep an eye on his brain growth, which is normal). He didn't show any signs of being developmentally behind until the the age of 12 months when his speech regressed. His ped sent him to a specialist to have an eval done at 18 months old. At which point he tested at about the 10-11 month age level. Four weeks ago his ped sent him to a Geneticist to check to see if he has a "syndrome". I should be getting those test results back any day now. So for right now he is in speech 1x a week...he goes for a feeding eval the 21st and an OT eval sometime in Oct. (hopefully earlier through Early Intervention). We are constantly at the dr's and have spent a small fortune in medical bills...I can honestly say this has been an extremely trying, stressful 2 years.
Noah is showing signs of being developmentally behind as well
. He doesn't say many words and really doesn't direct them to what they actually mean when he does say something. He is begin evaluated next week by Early Intervention....I don't know if his speech delay is due to Noah "copying" Matthew's speech technique or if he has a true delay. He was born via emergency c-section at 36 weeks old due to a placental abruption...we just don't know if that alone did any harm to him. I just don't know...all this is soooo frustrating! I just want answers and I want my boys to be ok! I don't want them to grow up with learning issues...I know I am truly blessed to even have them here with me due to the nature of their pg/birth....it's just hard dealing with the everyday stresses of dr's/not knowing what's next. Anyone know what I mean? I just feel like I am rambling! IF you made it this far into my post...thanks so much!
God Bless,
Nicole
I first want to say I am so pleased Clara created this new "special" board!
At 2 months old Matthew was diagnosed with Craniosynostosis (premature closure of one or more sutures in the skull). They believe it is due to the low amniotic fluid I had throughout my pg with him. At birth it was discovered he also had a True knot in his cord. He is being closely followed by a Neurosurgeon (has been seen by many others). He has also had many CT scans, X-rays and an MRI (to keep an eye on his brain growth, which is normal). He didn't show any signs of being developmentally behind until the the age of 12 months when his speech regressed. His ped sent him to a specialist to have an eval done at 18 months old. At which point he tested at about the 10-11 month age level. Four weeks ago his ped sent him to a Geneticist to check to see if he has a "syndrome". I should be getting those test results back any day now. So for right now he is in speech 1x a week...he goes for a feeding eval the 21st and an OT eval sometime in Oct. (hopefully earlier through Early Intervention). We are constantly at the dr's and have spent a small fortune in medical bills...I can honestly say this has been an extremely trying, stressful 2 years.
Noah is showing signs of being developmentally behind as well
. He doesn't say many words and really doesn't direct them to what they actually mean when he does say something. He is begin evaluated next week by Early Intervention....I don't know if his speech delay is due to Noah "copying" Matthew's speech technique or if he has a true delay. He was born via emergency c-section at 36 weeks old due to a placental abruption...we just don't know if that alone did any harm to him. I just don't know...all this is soooo frustrating! I just want answers and I want my boys to be ok! I don't want them to grow up with learning issues...I know I am truly blessed to even have them here with me due to the nature of their pg/birth....it's just hard dealing with the everyday stresses of dr's/not knowing what's next. Anyone know what I mean? I just feel like I am rambling! IF you made it this far into my post...thanks so much!God Bless,
Nicole
