Post by rachelandtyke on Sept 13, 2006 14:20:58 GMT -5
I suppose I'm another one of those wondering if we belong here, but based on Jill's post, I guess we fit right in!
Not sure where to start with all this!
So far, these are all our specialists and why we have been seeing them:
Physical therapist (currently released!) - Allie was in PT for 7 months due to torticollis and hypotonia. She is technically released, but we are keeping an eye on her as she still has a tendency to tilt with her torticollis. Her hypotonia is much better.
Speech therapist for Feeding therapy (just released!) - Allie has been in feeding therapy for the past 10 1/2 months. When she was 6 weeks old she was hospitalized for failure to thrive. They determined it was an intake issue, but thought she'd outgrow it. Almost 2 months later we finally figured out that she has a high palate and that she had a weak suck and did not know how to use her mouth properly. She was diagnosed with dysphagia and hypotonia and oral motor dysfunction. Our first goal was to get her to be able to nurse without any help from me and to sustain herself that way. Then we had to work on solids and then a sippy cup. She also had lots of oral and facial hypersensitivity, but that seems to be resolved for the most part.
Cranial Sacral Therapy (at my discretion) - we saw an Occupational Therapist for CST to help with her torticollis/hypotonia/reflux for 5-6 months. Now we only go back if I think she needs to.
GI doc - continuing reflux and multiple food allergies and intolerances. Her technical diagnosis is Milk Soy Protein Intolerance, but she also can not have wheat/gluten, eggs, sesame, apples, carrots, banana, and avocado. She takes pepcid for the reflux after I refused Reglan.
Pediatric opthamologist - Allie does not make tears when she cries. Not sure why. It could indicate an autonomic dysfunction, but we haven't pinpointed anything yet. We have to go in every 6 months to make sure her eyes are at least the minimal amount of moist so there is not damage.
Speech Therapist - She was just tested today by her SLP. She is barely at the 9 month level although she is almost 14 months old. We will be starting speech therapy now.
Pediatric audiologist - Due to her speech delay, she is being sent not to have her hearing tested and determine if a hearing problem is causing or contributing to her speech/language processing problems.
Allie is also going to be evaluated next month by our area Early Intervention services to see if she qualifies through that. They will do a thorough evaluation. One of the things that we are wondering about is if she has sensory issues going on as well. They are going to check into that and check her speech as well. Due to insurance, we may have to switch to EI for speech therapy.
Goodness, I think that is everything!
I still have an underlying nagging concern that there is something causing all this - that there is some connection we are missing or that has yet to be determined. It's starting to be too many things for them all to be random, in my opinion.
Well, that's us and why I think we might just belong over here!
Rachel
Not sure where to start with all this!
So far, these are all our specialists and why we have been seeing them:
Physical therapist (currently released!) - Allie was in PT for 7 months due to torticollis and hypotonia. She is technically released, but we are keeping an eye on her as she still has a tendency to tilt with her torticollis. Her hypotonia is much better.
Speech therapist for Feeding therapy (just released!) - Allie has been in feeding therapy for the past 10 1/2 months. When she was 6 weeks old she was hospitalized for failure to thrive. They determined it was an intake issue, but thought she'd outgrow it. Almost 2 months later we finally figured out that she has a high palate and that she had a weak suck and did not know how to use her mouth properly. She was diagnosed with dysphagia and hypotonia and oral motor dysfunction. Our first goal was to get her to be able to nurse without any help from me and to sustain herself that way. Then we had to work on solids and then a sippy cup. She also had lots of oral and facial hypersensitivity, but that seems to be resolved for the most part.
Cranial Sacral Therapy (at my discretion) - we saw an Occupational Therapist for CST to help with her torticollis/hypotonia/reflux for 5-6 months. Now we only go back if I think she needs to.
GI doc - continuing reflux and multiple food allergies and intolerances. Her technical diagnosis is Milk Soy Protein Intolerance, but she also can not have wheat/gluten, eggs, sesame, apples, carrots, banana, and avocado. She takes pepcid for the reflux after I refused Reglan.
Pediatric opthamologist - Allie does not make tears when she cries. Not sure why. It could indicate an autonomic dysfunction, but we haven't pinpointed anything yet. We have to go in every 6 months to make sure her eyes are at least the minimal amount of moist so there is not damage.
Speech Therapist - She was just tested today by her SLP. She is barely at the 9 month level although she is almost 14 months old. We will be starting speech therapy now.
Pediatric audiologist - Due to her speech delay, she is being sent not to have her hearing tested and determine if a hearing problem is causing or contributing to her speech/language processing problems.
Allie is also going to be evaluated next month by our area Early Intervention services to see if she qualifies through that. They will do a thorough evaluation. One of the things that we are wondering about is if she has sensory issues going on as well. They are going to check into that and check her speech as well. Due to insurance, we may have to switch to EI for speech therapy.
Goodness, I think that is everything!
I still have an underlying nagging concern that there is something causing all this - that there is some connection we are missing or that has yet to be determined. It's starting to be too many things for them all to be random, in my opinion.
Well, that's us and why I think we might just belong over here!
Rachel
