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Post by monicag on Sept 12, 2006 8:57:48 GMT -5
Hi, This is just an incredible board and I'm so thankful to see that I'm not alone. Jesse is my sweet almost 3 year old (he was born November 11, 2003). He is my third child...Long and short of it is that he was diagnosed with CP, Autism, and Global Delays ( a polite way of saying retardation). We've had every test under the sun and they can't find anything wrong...no genetic thing...no problem with metabolism..etc. It think for me that was the first hurdle to overcome... WHY WHY WHY. I am the kind of person that needs a WHY and then I have to be able to fix it. Jesse is now starting to walk without holding on. He can take some steps but is very unsteady and falls alot..... The part that is really hard is that he can't talk... he understands everything but he can't talk......it is so frustrating for him and for us. I could write volumes but I won't right now. My biggest hurdle is fighting with the county for services....UGH!!! For now I'm trying to do what a wonderful woman told me once. "LOVE HIM BACK TO HEALTH"
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Post by my4boys on Sept 12, 2006 9:36:05 GMT -5
Monica, Its SO good to see you here!!! I have thought of Jesse and you, often. You were so kind when my niece was battling for her life. To me, you are an angel on earth! What better mother could Jesse ask for??? I am sorry you are having to fight for services from the county. Are they not wanting to offer them at all? Or not what he needs? I am curious as to how bad his CP is? The reason I ask, is that both my neice and my nextdoor neighbor (a dear friend) has a little girl with CP. Morgan just turned 4 last month (she is 9 days younger than Lane). She was born fine, but at 2 months old, she literally died, and was revived after 12 minutes. She has made amazing strides. (she also has other issues besides CP, as well). Her parents have fought for many services, and the growth this little girl has made is amazing to me. I never even thought she would survive, let alone do anything she is doing. Anyway, they just got her into some specail program that is supposed to do wonders with her CP. I am not sure what all it entails, but if you would like some info, I would be more than happy to talk to her...we are actually going out for a "girls" night tonight..just her and I. Anyway, you know how I feel about Jesse. He is a precious gift from God. and I KNOW, just as Chloe has, He is going to touch SO many lives!!! he has already touched mine, and I havent even met him (YET...I DO plan to, someday!)
Anyway, sorry to go on and on...it was just good to see you here! I have missed ya!
Blessings~ Wendy
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Post by monicag on Sept 12, 2006 10:14:38 GMT -5
Hi Wendy, THanks for your kind words. The developmental doc at Children's gave him that label 2 months ago...she based it on the fact that he couldn't walk alone...was very unsteady, can't talk...blah blah blah.... she is the head of the CP clinic so I guess she knows what she is talking about... I'm sick of all the tests they do...it is all so subjective. Jesse is a sweet little guy but when he is around other kids his age you can really tell how behind he is. He understands everything which is good... I think he is smart but he just can't tell us. How is Chloe? I think of her often. I just get so tired working full time and trying to do and arrange care. My husband is not really working (a few hours here and there doing construction) so I worry about finances and things I can't really control. Lily sounds very sweet and she must be getting so big!! Jesse is big..he is 34 lbs and 38 inches tall.
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Post by thankful heart on Sept 12, 2006 15:41:33 GMT -5
I just wanted to say that I continue to pray for you and Jesse. God has a great plan for your little man...I know that each day is a challenge but I'm praying for moments of joy in the midst of it all....
:hug:
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Post by monicag on Sept 13, 2006 7:35:16 GMT -5
Hi Stacy, I miss chatting. It has been so nuts here. I'm overwhelmed. I don't know what normal is anymore. I'm at work ALL DAY....BOO HOO
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Post by lindac on Sept 14, 2006 16:55:57 GMT -5
(((((((((MONICA))))))))))) Today taking steps, tomorrow talking. Jesse is making progress! It may take him longer and progression may be slow but he is moving forward!!! I hate when kids are labeled. Often they live up to those labels. You want more for Jesse and because of that Jesse will do more and will gain independence. He is going to try even harder because of the frustration and you will too. It is a hard road but Jesse has champions on his side and that isn't always the professionals who try to lead us to believe they know everything. They don't. There are still miracles every day. Go Jesse!!!! ;D Many, many hugs for you and Jesse!!!
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Post by nicoledoug on Sept 16, 2006 22:21:42 GMT -5
Monica,
Welcome! Many hugs to you and little Jesse~I am sorry you have to "fight" the state for something you medically deserve!
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Post by wuvmyangel93 on Sept 17, 2006 2:13:03 GMT -5
Monica
many prayers for Jesse and if you need help with the county just ask.
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