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Post by monicag on Dec 19, 2010 20:41:06 GMT -5
Anyone know about it. We have not filed yet...but getting conflicting infomation. We are in Pennsylvania?
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Post by Alaska on Dec 21, 2010 6:43:59 GMT -5
It's a federal program so state shouldn't matter. What kind of conflicting info?
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Post by lindac on Dec 22, 2010 22:24:35 GMT -5
((((((((((((((((((((MONICA)))))))))))))))))))))))
You should certainly qualify but be aware that you will no doubt have to appeal and appeal and then appeal again. It is a lengthy process most times and people rarely are approved right away.
Sending many hugs and a special one for Jesse.
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Post by monicag on Dec 25, 2010 13:13:19 GMT -5
Hi all, THe conflicting info is that some say it goes by your income and others say an autism diagnosis is automatic. I really have not had time to check it out...but I should since he is 7 and it is clear that he is "disabled" I do really not like that word. Thanks Linda C. Jesse is having a VERY rough time around new places or new anything for that matter...it is hard on the whole family. He cries and whines constantly...like he is in fear of everything life has to offer.
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Post by wuvmyangel93 on Dec 29, 2010 18:26:19 GMT -5
Monica
It will always go by your income but like I said when your son was tiny apply anyways because the waiver lists can be years long.
I don't know if your income alone would put you over with 3 children in the home and 2 adults.
Please apply and if he is denied appeal it but do not use a lawyer its not necessary.
KM qualified when she was 10 on chemical sensitivity, she was denied earlier in wA for the autism saying she would outgrow it LOL.
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dmf53
Full Member
Posts: 231
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Post by dmf53 on Dec 30, 2010 11:33:36 GMT -5
I have found that nearly all applications are denied the first time, no matter how severe the "disability." And no matter how unacceptable the word is, the whole intent of the application will be to prove that your son is unable to function in certain areas of his world without assistance. Unfortunately, since autism is a spectrum disorder and that concept is totally misunderstood by the paper pushers that read and approve the applications, you may need to find something very specific like the "chemical sensitivity" or "tactile sensitivity" to emphasize. Every state has something called "Benefits Navigators" whose only jobs are to help advise you through this process. Some are pretty good, some aren't a great help...but you won't know until you try. I'm not sure how you can hook up with them in your state, but if you google your state's Vocational Rehabilitation office, they will be able to tell you. Also, you do have the Social Security Red Book, don't you? It is written in "government-ese" but is really the best reference book you can get. Wuvmyangel is correct, you do NOT need an attorney for this. It is really a pain to keep up with the paperwork, but considering what you would have to pay an attorney, it is SO worth doing it yourself. ;D Are you connected with an Autism Support Group in PA? I'm sure someone in the group has already been through the process, and could give you some specific advise on wording. Don't get discouraged. It is there to help you. And remember...when you get REALLY annoyed...every US Congressman and Senator has a person in his state office who handles nothing but Social Security issues. ;D ;D ;D (Do as much as you can on your own, before you call them, but once you do, you need your ducks in a row...things move quickly when they are involved.) Sending hugs, Dru
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Post by eg on Jan 1, 2011 9:31:18 GMT -5
we were denied for years before A was approved last year.... My best advice appeal appeal appeal..... they will not tell you this , and some will even tell you to drop it then apply again ( at least they told me that , I shouldn't have listened) The back pay is from the date you first applied IF you appeal throughout the denial process. We could/should have gotten 19,000 dollars in back pay, but ended up with 400. I also wouldn't get a lawyer involved until they just are unable to deal with, hopefully (usually?) that doesn't happen. If you have a doctor that is very good at the terminology needed for Social Security paperwork (like a developmental ped. or similar) everything should go smoothly.
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Post by monicag on Jan 4, 2011 20:57:05 GMT -5
Awesome info. MANY MANY thanks. YOu ladies are the best. I'll let you know how things are moving along.
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